I am extremely thankful for the five different doctors that helped me get things figured out. Besides the weight loss (which has stopped) and the night sweats (which have dropped in frequency) I really don't have anything else that would indicate something is wrong. I wonder how long I would have gone not knowing that there was something moving in on my turf. I appreciate their help and feel almost a guilt leaving their care but we have opted to move to another health care provider.
When you have the worlds largest lymphoma center within a 30 minute drive, the logical choice is to make the move. We met with Dr. Fowler on Tuesday the 27th. Dr. Fowler is 1 of 10 Lymphoma doctors at MD. We spoke with him for 30-45 minutes and every question was met with an answer and a drawing of how things work and what our options were. All new cases are presented to the 10 doctors and pathologists for agreement on a treatment plan. It was encouraging to know that 10 of the best lymphoma doctors would be reviewing my case on Wednesday.
We were presented with a couple of different chemo scenarios pending the opinion of the MD pathologist. The mass biopsy results that were processed several weeks early were mixed results and MD wanted to make sure we cleared everything up prior to settling on a treatment plan.
The two plans that we are looking at both last 6 months and are followed by a radiation cycle to blast whatever scar tissue is left over from the swollen lymph / mass / tumor.
Plan 1 - Chemo treatment every 15 days, outpatient procedure
Plan 2 - Chemo treatment once a month but requires hospitalization for several days.
The next step is to give some additional blood tomorrow and follow up with Dr. Fowler on what the lymphoma group decided we should do.
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